As a infant, my younger sister had severe asthma. She had to go to the emergency room often to receive life saving care. Her pediatrician recommended that she be a part of a study at a local hospital that was testing a new medication for asthma. Participation included free supplies, medication, and close monitoring of my sister's physical health. She was required to perform various breathing tests and physicals twice a month until the age of twenty-one. All the participants were informed that one group would receive the medication and the other group would be taking a placebo.
This research process was a positive experience for my family. My sister's condition improved, and it helped my mother financially because all of the asthma medication and supplies were free. They also provided valuable information about how to prevent asthma attacks and proper treatment methods. Beyond the medical care, my family developed and maintained personal relationships with the researchers and their assistants. One of the women became a mentor to my sister. She encouraged her to maintain her grades and stay in school. Her and my sister still keep in touch today.
My sister no longer experiences the effects of asthma. In fact, her condition improved so much that everyone believed she was a part of the group who was taking the medication. So, it was hilarious when they found out that she had never taken the medicine. She was in the placebo group the whole time! This means that the care she was getting during the study was the cause of her condition improving. Personally, I believe that if it was not for this research study my sister would have had an unhealthy childhood plagued with severe asthma attacks. I am grateful that my mother consented to this research study, which positively effected my sister's health and well-being.
Wow, that was great insight about your personal experience with research. My husband has bad asthma and his mother had a chance to put him in a research study, but she declined the offer. Maybe if she would of considereded thr study, his effects wouldn't be so bad today.
ReplyDeleteKrista,
ReplyDeleteI love your story about your sister and how it effected your family. Asthma can be very scary and it is wonderful your sister does not have to deal with it on a daily basis anymore. It is nice to read a positive story related to a research study.
Alissa
It is amazing how the power of suggestion can be medicinal. How wonderful that your sister received the medical assistance that she needed while not pumping her body full of medicines.
ReplyDeleteA very interesting and inspiring story. I have witnessed the debilitating effects of lupus, colon cancer and AIDS.I salute people who are hopeful and brave brave enough to consent to participate in research studies.
ReplyDeleteKrista,
ReplyDeleteThat is a great story! I’m glad to hear that you have had almost firsthand experience in a research study. I can see where having free medication was part of the incentive in the study and am very happy to hear that you and your family benefited from the experience.
Arica